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I'm glad you found this site so you at least know you aren't alone. If you're reading this because someone you love is going through this, take what they say, imagine how you think they feel and then multiply it by 100 and you'll be close. I was on gabapentin, but after three years on it, I started to have extreme anxiety and depression, to a disabling I had to get off of it. Just hang in there!!! His grace is sufficient. Cheryl, thanks for posting this. The risk of PHN is highest in older people and those who have very painful shingles. The rash then showed up on my upper left lip and left check. I had small rash by the time I went to the doctor. I am telling you this so you do not suffer undue stress. My physician recommended 100mg Vitamin B6 once/day. The pain is severe and it will come and go for 6-8 weeks but then it should get better. The pain was so bad the next day I went to the ER room. Though there are times that the pain is tolerable - I don't believe I will ever be back to normal.It all started weeks ago when I thought I was going crazy with pain in my foot and kept telling me wife to look at the bottom of my foot and my big toe as I felt these horrible pains, but she never was able to see anything, but trust me - I felt something!A couple weeks after the first onset of the pain - the rash started to appear. It's been a full month for me now. I will repeat that I feel fortunate to be on Adderall because with it being a stimulant, I think it pulls me up and out of myself with this idiotic shingles deal. I'm not laughing now after six weeks of hell. It was bright red and I was hospitalised on IV Acyclovir. Thanks all of you. Problem is he is in Ohio and I live in FL so can't get no more TEMS to help arm pain. I hope someone is still here. It just added to the misery.If you happen to see this, please reply and let us know how you are getting along. Sympathy for anyone going through this. I would like to subscribe to Science X Newsletter. I wish you all the best and a very speedy recovery! In place of the vinegar, you can use ORIGINAL Listerine (the amber colored mouthwash). You may want to give lidocaine patches a try. Yes the lethargic exhausted feeling- always tired, feeling slow. I'm on the anti-viral medicine and was given a lidocaine gel-like substance to dab over the rash up to four times a day. I couldn't even stand up straight.I'm just about ending week 3 and although the burning has subsided a lot and the rash is fading, it still feels like there is no relief in sight with this pain. I'm glad you were able to deal with the pain through this remedy. I was diagnosed on 1st March after a lot of steroid treatment. I've only had shingles for just over a week so am wondering if I have got off lightly. Sounds crazy, but it's true. It's definitely a monster disease. I feel like crying sometimes because my sleep is interrupted and I have been taking ambien to help me sleep. I understand from reading this journey of others lasted 6-8 weeks. I would do this several times a day - basically whenever the itching became bothersome. When the doctor diagnosed me I didn't have a rash, but now that has come out accross my chest, under my arm and up my left shoulderblade.I am no stranger to pain as I have fibromyalgia which on a bad day, feels like I've been set on fire whilst being stabbed with knitting needles. Like I said my wife is a doc and doing all she can but I got 1 hour last night and 2 the night before that's about my norm. Antiviral treatment for shingles, as well as vaccination against shingles, can help prevent post-herpetic neuralgia. It's a learning experience and my bathroom is beginning to look like a drug store isle. My meds do keep me asleep at night. I am wondering whether I should try some Lyrica for a week or so since I have some on hand. I just want it to stop and feel normal again I would do anything, Forgot to mention it is on my scalp back of neck where hairline beginns side of my neck and ear, Carmen, I feel so bad for you. I have pain in my back, my side and it hurts when I breathe and the pain is making me feel sick. I am so sorry to hear that you are 3-1/2 months in and still under distress. He diagnosed muscle strain of the teres minor and major and irritation of the nerve that runs between them. Hang in there! I hope you heal soon. Just a bit unnerving because it's like it's still talking a little. The good news is there will be some short periods of time when the pain will go away. I also have this strange gnawing in the pit of my stomach sometimes. Haven't been able to sleep though the night once. I had vague symptoms about a week ago then broke out on one side of my face ,God awful lesions under chin and ear. My shingles ended up lasting for five weeks. That went and this started. I know it's not really in my ear - it's the nerve beneath - but it feels like a hot poker stabbing my ear all the time. 10 days of anti viral meds 3x a day, percocet, steroid pack and gabapentin, 100mg 2x a day, and 1 300mg at bedtime with 10mg of amitriptyline at bedtime. Until a week or so ago, I was getting up every two or three hrs to use either ice or Lidocaine, and taking Tylenol about twice a night. I hope everything calms down soon. I was trying to sleep on the couch in a fetal position since lying down was impossible. I haven't slept in the evening for seven days now, but for those of you who are Christian, I find meditating with the Lord and reading His Word help get me through the nights. I am so glad I found this blog. She said yup, that'll do it. No relief from post herpetic neuralgia . Sleep as much as you can then. I am so sorry I missed this comment! My poor mum has it and isn't sleeping at night. The thing to remember is that for most people, this will truly go away. I'm 6 days in and I still can't believe this is happening to me. I manage my symptoms through diet and exercise, application of hot and cold, and, of course, peppermint oil or Biofreeze (menthol seems to help temporarily). I finished my shingles meds about a week ago. COULD. See: for my experience with that. I am anonymous up there and I am still resisting Neurontin. A heat pad is really what has been getting me through the night. He is our healer! The bad news is that shingles pain is neuralgia, and that kind of nerve pain doesn't respond very well to narcotics. I was so cocky at the time I didn't think I would use the Norco. Be kind to yourself. We have been non stop. Applying benedryl cream. Hope things improve for you as well. During the day I am almost normal. I haven't been in my bed in almost 3 weeks. Some ppl beleive that because you are trying to … Thanks for all the comments I am 26 and recently seen the doctor and told me :( In one day it spread to my back to shoulder and underarm I taking my meds 3 times a day this is my first complet day of meds! Hope it goes away soon. It's just one long, drawn out, mind-numbing pain. what does it mean if shingles isn't painful? I have not slept in 4 days and i am so worried about my baby tho doc says it doesnt harm the child. At this point, it's more itching than the burning pain as before. Emelia, thank you. I have also had a terrible stomach - pain, nausea, and constipation - as the nerve affected also runs through my abdominal area. just mild itch. Shingles can make it where you do not feel like eating, at least initially. 3rd night explosion not so severe. I was diagnosed with shingles on December 5, 2017. If the rash is confined to one side of the body and does not cross the mid-line either on the back or on the front, it is likely to be shingles. Got some Hydrocodine from the Dr yesterday as the other pain pills didn't touch it. That was more helpful but still deficient so since I had the left-over 100mg capsules, I increased it to (400mg,3Xday) which has been the most helpful. And she prescribed antiviral ointment and drops for my eye. I finished the course of Aciclovir yesterday, yet the pain gets worse. It makes your skin feel cold but really good. This time of year is a stressful time with my husband and I both being self employed and during one of our most busy months. It would appear that you have been spared the pain associated with Postherpetic Neuralgia (PHN) which is the name of the condition causing pain during shingles. I've never had this before and I'm miserable. So Im 1 1/2 weeks with the rash and extreme shoulder and arm pain, and the weakness is at about week 4... 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